La Rabida Children’s Hospital provides specialized, family-centered health care to children with medically complex conditions, disabilities, and chronic illness. Through expertise, compassion, and advocacy we help children and their families reach their fullest potential, regardless of their ability to pay.

Our not-for-profit hospital, licensed for 49 beds, helps transition children from neonatal or pediatric intensive care to home, by providing medical, rehabilitative and developmental care, and by training families to continue treatments and manage the necessary equipment in the home. La Rabida also provides extensive rehabilitation for those recovering from wounds or burns and treatment for exacerbations of chronic conditions.

The hospital’s enhanced pediatric patient-centered medical home provides primary care to children with complex medical conditions and their siblings. Children with medical homes elsewhere come to La Rabida for specialty services. La Rabida offers a wide range of specialty services provided to children with sickle cell disease, diabetes, and many others. Children are supported in their emotional and developmental growth, particularly in cases where such growth has been interrupted by accident or disease.

Finally, La Rabida provides forensic and treatment services for children exposed to abuse and neglect, comprehensive assessments for youth in care, early intervention for children between 0 and 3 years of age. Care coordination services for medically complex children are also provided for those who are covered by a health plan and receive care from providers in Cook County

The Health Data Privacy Specialist is responsible for ensuring organizational compliance with HIPAA and applicable federal and state privacy regulations. Serving as the subject matter expert on patient privacy and data protection, this role develops and maintains privacy policies, conducts risk assessments and audits, investigates potential privacy breaches, provides staff education, and collaborates with internal and external partners to safeguard protected health information (PHI). The Specialist supports HIM operations, regulatory reporting, vendor compliance, and ongoing privacy monitoring across the organization.

Key Responsibilities

• Develop, implement, and maintain privacy policies and procedures in compliance with HIPAA and state/federal regulations

• Serve as the organization’s subject matter expert for privacy, security, and Release of Information (ROI) practices

• Conduct privacy risk assessments, compliance audits, and ongoing monitoring of PHI handling

• Investigate potential privacy breaches, coordinate corrective actions, and support required notifications and reporting

• Provide privacy training and education to staff, including orientation and annual mandatory education

• Collaborate with Compliance, Legal, IT, HIM, and operational leaders on privacy and data security initiatives

• Support regulatory audits, RAC reviews, and compliance reporting requirements

• Oversee third-party vendor privacy compliance and secure PHI disposal practices

• Support HIM, coding, and revenue cycle compliance activities as assigned

• Education: Bachelor’s degree in health information management from a program approved by the American health information Management association required
• Related Work Experience: 3-5 years of Health Information Management.  Knowledge and experience in information privacy laws, release of information.
• Skills: Demonstrated organization, facilitation, communication and presentation skills
• Licensure/Certification: RHIA (Registered Health Information Administrator Certification required)
• Specialized Knowledge and Skills: JCAHO, Medicare, IDPA, state, local and federal laws and guidelines established by regulatory agencies

La Rabida Children’s Hospital is very proud to be an Equal Employment Opportunity Employer

La Rabida is a place unlike any other. We understand the needs of families with children dealing with the most serious or complicated of conditions. With teams of the best healthcare providers in Chicago, we give continuous, comprehensive care, education, and support, helping families face their unique obstacles head-on.   

La Rabida Children’s Hospital is very proud to be an Equal Employment Opportunity Employer.