About the organization:

We are the leading organization dedicated to ending the most common form of dementia under 60, known as FTD. We help families affected today, and drive research to bring hope for the future. 

AFTD was founded by a volunteer in 2002. Empowering families to bring about change and make a difference in the lives of others in their communities is central to everything we do. We raise awareness to tell the world about a devastating, little known disease. We educate health professionals, helping them to provide responsive care in their communities. We fund leading-edge science and work with leading biopharma companies to advance research.  

We value knowledge, compassion, collaboration, respect, and dignity. Our work to bring about a world without dementia is only missing your passion and your expertise. AFTD stands at a pivotal moment for the organization. We are growing rapidly, with a greater ability to offer help for those affected than ever before. By applying for this essential role, you can take the next step in your career with the opportunity to be a leader on AFTD’s Support and Education team, to fulfill AFTD’s mission – and truly make a difference for others. 

About the Role:

The Volunteer Coordinator is directly responsible for engaging volunteers in AFTD’s mission and assisting each person to have a positive experience and meaningful impact. They implement volunteer recruitment, orientation/onboarding, retention, and recognition efforts. The Volunteer Coordinator will develop an understanding of each individual volunteer’s interests and connect them with activities and opportunities that meet those interests. They will work collaboratively with the Volunteer Manager and staff in all departments to develop an array of face to face and virtual volunteer opportunities and roles that respond to organization and community needs. They will handle all administrative aspects of the volunteer experience, maintaining accurate and current information on each volunteer. The Volunteer Coordinator will have extensive interaction with all aspects of the constituency, including care partners, persons living with FTD, staff and healthcare professionals.

Essential Job Functions:

• Volunteer engagement – Interview and screen new volunteers, match volunteers with specific activities of interest, coordinate with staff lead, track activity level and satisfaction. Maintain regular communication; ensure volunteers follow administrative processes and procedures. Work closely with AFTD staff in each department who supervise the work of the volunteers. Coordinate volunteer awareness activities in assigned area, including Meet and Greets and table settings. Assist in identification of opportunities for awareness activities in volunteer communities.
•  Relationship Building: Develop and maintain effective relationships with volunteers; provide initial and ongoing communication and engagement through each volunteer’s tenure. Plan and facilitate online meetings for volunteers to connect around activities and develop a sense of shared mission and community. Assist with planning annual Volunteer Leadership Summit; attend regional events to represent AFTD. Plan and implement annual volunteer recognition activities.
• Database Maintenance and Support: Maintain volunteer information in AFTD’s database including comprehensive volunteer contact records, location, and interests; utilize the database for centralized reporting on volunteer status, training and activities; contribute to development of scalable automated processes to ensure ease of tracking as the volunteer network grows.

Other Job Functions:

• Coordinate closely with Advancement department and grassroots fundraising volunteers and events, support engagement in annual campaigns.
•  Meeting planning and facilitation
• Contribute to the recruiting, support, and engagement of volunteer ambassadors and other volunteer leadership roles
•  Contribute to AFTD publications and materials for volunteer program promotion and recruitment
•  Travel overnight (anticipated 3-4 trips a year) throughout the continental US.
•  Occasional evening or weekend work to accommodate volunteer schedules.

Supervisory Responsibilities:
• This position is an individual contributor and does not have supervisory responsibilities.

Knowledge, skills and abilities required for this role:

• Bachelor’s degree required. Equivalent experience may also be considered.
• 2 years of non-profit experience, relevant service-oriented role or other administrative role
• 1-2 years of experience working with volunteers and/or personal experience as a volunteer preferred.
• Strong communication skills required; particularly verbal via telephone, video calls and in-person
• Ability to work independently and as a team member in a fast-paced environment
• Strong organizational and attention to details skills, with the ability to multi-task
• Strong Microsoft Office Suite skills, particularly Word, Excel, and PowerPoint are required, MS Team and database experience a plus
• Interest in dementia, disease advocacy or healthcare a plus

The Association for Frontotemporal Degeneration requires all new employees to present proof they are fully vaccinated against COVID-19 when they start work. Currently, “fully vaccinated” is defined as someone that has received both doses of the Pfizer/Moderna COVID-19 vaccines or one dose of the Johnson & Johnson COVID-19 vaccine 14 days or more before they begin work. Individuals with a disability or a religious reason preventing them from taking the vaccine may request an accommodation. 

AFTD is committed to creating a diverse environment and is proud to be an equal opportunity employer. All qualified applicants will receive consideration for employment without regard to race, color, religion, gender, gender identity or expression, sexual orientation, national origin, genetics, disability, age, or veteran status. 

All of your information will be kept confidential according to EEO (Equal Employment Opportunity) guidelines. 

If you are interested in learning more about this unique opportunity, please submit your cover letter and CV. Only applications with a cover letter will be considered.