At Sobi, each person brings their unique talents to work as a team and make a difference. We are dedicated to developing and delivering innovative therapies to improve the lives of rare disease patients and our edge comes from our team of people.

Sobi offers the opportunity to work at an international pharmaceutical company focused on specialty pharmaceuticals meeting the high medical needs of rare disease patients and providing treatment and services to them. Our employees come from a variety of backgrounds within research, healthcare, industry and the academic sphere.

The Patient Journey Director CEERJ enables journey from first symptom to diagnosis, referral and appropriate care outcomes faster, clearer and fairer for people living with C3G/IC-MPGN and severe hypertriglyceridemia (sHTG) across CEERJ.

The role is driven by a genuine passion for improving the patient journey. It identifies where patients are delayed, missed or lost, partners with country medical and commercial teams to understand why, and turns those barriers into practical, compliant and measurable initiatives. This includes leading the integration of medical devices and diagnostic-enabling platforms (Florio, Enfuse, diagnostics) into patient journey frameworks for strategic CEERJ therapeutic areas (C3G/IC-MPGN, sHTG and secondarily haemophilia).

The role operates in a fast-moving, changing environment. The holder works in an agile way: sets few clear priorities, adapts quickly as launches, access and evidence evolve, and turns insight into executive-ready plans that are communicated clearly to the Brand Teams, Leadership Teams and Core Medical Team.

Main responsibilities:
Own the patient journey agenda for C3G/IC-MPGN and sHTG across CEERJ. Define, maintain and continuously refine a regional patient journey framework that identifies diagnostic difficulties, delays and post-therapy difficulties, and translates them into prioritized, measurable initiatives.

Partner with countries to map and clear barriers & opportunities. Work alongside country leaders and field teams to map country-specific barriers (awareness, testing access, laboratory and biopsy pathways, referral fragmentation, expert centre availability, non-pharmaceutical therapy optimization opportunities)

Build & resource executive plans. Develop concise, prioritized patient journey improvement projects with clear milestones, owners, dependencies and KPIs. Resource and adjust them rapidly as conditions change. Report progress to senior leadership in Core Medical Team, CEERJ LT and Brand Team forums.

Lead projects and matrix teams: drive relevant Patient Journey projects and allocated matrix teams from kick off to close out ensuring clear planning, budgeting, delivery and reporting on time and within budget

Lead integration of medical devices and enabling platforms. Lead integration of Florio, Enfuse, diagnostics and pipeline tools into patient journey frameworks across CEERJ. Ensure stakeholder value, country readiness and compliant use. Track adoption, escalate barriers and propose solutions.

Generate and act on patient journey insights. Interact with external community to enable systematic collection and synthesis of insights from HCPs, KOLs, diagnostic initiatives, patient organisations and country teams. Turn them into clear recommendations that change plans and decisions.

Mastery of the landscape. Keep current knowledge of C3G/IC-MPGN and sHTG science, diagnostic pathways, competitive and customer landscape, Tier 1 KOLs and patient advocacy groups, and related areas such as PNH and haemophilia.

• University degree such as M.D., Pharm. D., or PhD preferably with biological sciences background.
• Academic, clinical or industry experience in therapeutic areas such as nephrology, cardiology, endocrinology or immunology
• Minimum 2 years’ experience in commercial field role or medical affairs at a local level from larger country, with recognized success internally and externally. Experience in Patient Access, Community Engagement or Diagnostics will be a plus      
• Strong business acumen and presentation / communication skills across all levels of organization within and outside country
• Multi-stakeholder project management and leadership experience, with demonstrated ability to deliver results on time and within budget
• Strong project management skills and proficiency in Microsoft Excel, Power Point and other Microsoft Office programmes
• Working knowledge of EFPIA regulations and compliance requirements with demonstration of highest ethical standards
• Fluency in written and spoken English.
• Highly motivated and self-driven with ability to think innovatively & strategically, skillfully plan, manage and prioritize multiple projects independently; demonstrates resilience and flexibility
• Ability to work independently, while still maintaining a team and corporate approach to the function
• Proactive, open minded, experienced leader, able to identify and carry out strategic initiatives with high patient impact in launches and life-cycle management
• Strong business and scientific acumen, leadership skills, project management and scientific communication skills.

Additional requirement

• Frequent regional and international travel is required, approximately 40% of working time.
• Availability for external meetings, congresses and internal meetings outside standard hours with advance notice.
• Valid driver's license may be required depending on local role set-up.
• The role may be home-based or hybrid depending on country, local employment set-up and business requirements.
• All activities must comply with applicable laws, regulations, industry codes, internal SOPs and Sobi policies.

Here at Sobi, our mission and culture get us excited to come to work every day.

Sobi is a global company with over 2000 employees in more than 30 countries and are committed to the societies where we operate. We are a specialised international biopharmaceutical company transforming the lives of people with rare and debilitating diseases, providing reliable access to innovative medicines in the areas of haematology, immunology, and specialty care. Sobi’s share is listed on Nasdaq Stockholm. More about Sobi at sobi.com and LinkedIn.
We know our employees are our most valuable asset and our culture conveys that. We offer a competitive benefits package, to support the health and happiness of our staff.

Sobi Culture

At Sobi, we refuse to accept the status quo. This is because we have witnessed first-hand the challenges facing those affected by rare diseases and have used this knowledge to shape our business to find new ways of helping them.
As a specialized biopharmaceutical company, we are dedicated to rare diseases. And we see this focus as a strength. By effectively turning our research into ground-breaking treatments, we help make medicine more accessible and open more possibilities for patients and more opportunities for those caring for them. This has been our approach since day one, but we know we can’t change the world of rare diseases on our own. Accomplishing this requires strong partnerships with patients, partners and stakeholders across the entire value chain. Together, we define how our business can create solutions that serve the needs of those affected by rare diseases while facilitating sustainable growth.